Quantum_Conundrum
25th May 2012 - 06:23 PM
I'm 31 years old, and 25 pounds overweight, so on the boarder of "over weight" and the low end of "obese".
Unbeknownst to myself, I have been physically sick for several years now, apparently as much as a third of my life... the symptoms came on gradually, thought noticeable in memory, so that I was not aware that I had a chronic condition.
I have a family history of just about every major negative thing a person can think of, so there's that to start with.
high blood pressure
stroke
heart attack
diabetes
brain and skin cancers
I have been diagnosed with Hypertension, tachycardia (heart rate rarely drops below 100, and is often in the 120 to 140 range even when resting,) high cholesterol, and of course have extreme neuropathy.
I have been having neuropathy for at least 10 or 11 years, in the form of "Pins and needles" especially in my head and scalp, although I didn't realize that's what it was until about 6 months ago. I've had it all over my body as "pins and needles" and "fire" for about 5 or 6 years or so. Sometimes it doesn't happen at all, and other times it's so bad it makes me cry almost uncontrollably like a little kid, or cry out in pain.
I used to think it was some sort of headache, or was afraid I might be going crazy or that it was something "spiritual" as I saw it, but it was none of those things. I was afraid to tell anybody because I was sure they'd think I was crazy. I thought I was hallucinating.
I did not know exactly when it started, but thinking back, I have been having panic attacks and/or heart attacks for at least 10 or 11 years, but panic attacks don't make people pass out or collapse from weakness after throwing 5 or 10 feed bags, or walking 2 miles. I even have trouble opening a cola or a jar of pickles sometimes, and I used to crack that stuff right open...
I've also had two episodes a cataplexy (descending paralysis, not total,but extreme weakness and numbness,) within the past 15 months, and one episode of neuropathy that was so bad that it behaved as an ASCENDING psuedo-paralysis (not total, but weakness and severe pain,) starting in my feet and moving up over my whole body as burning fire and needles. When I explained these to the emergency room doctors, he simply said he didn't know what it was, but ran no tests to find out what it was...
I am currently on Xanax for anxiety, starting about a year ago, as well as blood pressure medicine that now has the blood pressure under control, and back exactly where it was supposed to be (it was 165/120 to 180/120,) and two statins to try to solve the cholesterol.
I'll add that I probably should have been on Xanax my entire life, because I've always suffered from severe social anxiety, but this was actually prescibed for the physical manifestation of PAIN caused by anxiety, which has apparently been happening for as long as 10 or 11 years.
I never add salt to ANYTHING, and when I cook, I don't even put salt in food when I cook. I also never add butter or margarine to anything. Never have.
When I told my primary care physician that the stuff seems to be helping "take the edge off" of the phantom pains, but that it still wasn't stopping it, he prescribed me Neurontin, but I don't want to be addicted to all of this stuff, so I don't take it at all unless the symptoms are already happening, or I take just 1 per day instead of 3.
I've had 3 EKGs, 2 Chest X-rays, a chest ultra-sound, a CT scan, and 4 CBC and metabolic panels done in the past 15 months.
The EKGs, X-rays, ultra-sound, and CT all came back normal, even during a cataplectic episode, in fact one emergency room doctor claimed that HE wished he had my heart, that it was that healthy, which is ridiculous given what a pulse ox counter says.
On the CBCs, there are actually 6 major factors way above normal, but not sugar. They said I was not diabetic.
When I asked about other markers on the CBC which were wack, including a second opinion, the doctors said not to worry about it.
Anyone knows me, I go and look up what the markers are for, and guess what?
*Meningitis (which I had as an infant and was hospitalized for 6 weeks)
Kidney and heart failure
auto-immune diseases
ALS
MS
certain weird pet and livestock diseases*
when I mentioned this to the second doctor, he told me "don't worry about it, only thing on the CBC concerns me is the cholesterol," in spite of 4 other major markers being outside normal range.
*= the meningitis I had was a unique strain which comes from livestock, which one of my great aunts had handled an animal before holding me as an infant and i got it from that somehow.
It's also possible since I'm a pet owner, or have been, that it could come from cats or dogs. I've been bitten or clawed by spooked pets on any number of occasions.
I guess it's possible these markers are getting a false positive from left-over antibodies Spinal Meningitis, which are otherwise unknown to medicine.
I've also noticed objectively that my concentration and multi-tasking may have decreased by as much as 50% from peak performance several years ago, some of this is normal aging, but certainly not all of it can be explained by that, not by a long shot. Heck, 30 is supposed to be human prime for some mental functions.
Ok, in spite of people on here insulting me and disagreeing with me on just about everything, I'm no idiot. I'm smart enough to know that I am either not being treated or diagnosed properly, or else the doctors are hiding something from me.
They haven't done a single test on me, as far as I know, to search for pathogens or toxins, except the CBC and metabolic panel.
Did the blood pressure cause the neuropathy, or are they both just symptoms of something else? Have I suffered permanent nerve damage?
I don't want to end up like Stephen Hawking in a wheel chair not even able to wipe my own ***, and with 80% of my body not working, but I'm afraid that may be where this is going if something doesn't change.
flyingbuttressman
25th May 2012 - 07:34 PM
QUOTE (Quantum_Conundrum+May 25 2012, 02:23 PM)
When I told my primary care physician that the stuff seems to be helping "take the edge off" of the phantom pains, but that it still wasn't stopping it, he prescribed me Neurontin, but I don't want to be addicted to all of this stuff, so I don't take it at all unless the symptoms are already happening, or I take just 1 per day instead of 3.
Do you have any evidence that Neurontin is addictive?
Mekigal
25th May 2012 - 08:00 PM
get the bad stress out of your live and replace it with the good stress . There is a difference you know . Most of it is attitude. Consider if you like riding a roller coaster ( thrill seeking ) Good stress because of the desire to ride the wild rails. Bad stress would be like the kid that does not ride the rail but is forced by his parents to ride . You see the difference ? It is all about the willingness . If you don't want to do it but you have to it is going to take you physically down . Your body is going to respond to your unwillingness to preform . What will it do to get you out of what you don't want to do .It will stress you out big time and as they say in my little world stress can kill .
You take someone who is in shock . Now you got an extreme case of stress overriding the body . You can die from shock . Anyone who has learned first aid and remembers the training knows this . It is not any secret .
Now think of stress in the same way . Shock over a course of your life time . You can get a feel for why people live in denial and start to resist change in there life . Try to find stability instead of continued growth. They get mighty tired of thew shock of change .
I should thank my wife right now as she is the one that keeps me changing . She is never satisfied where the recliner is . Just when I become a real good potato she makes me get up and move my potato skin.
O.K. resistance is the meaning of life. All electricians know that . So you have to resist our create resistance in your life . Make it the good resistance( things that make you happy , not the other person stressing you out by making you do what they want against your will )
That is a little bit of bullshit as forcing someone to grow is good , but it is more in how the person them selves handle it that makes the difference
Like the psychosomatic of it suggests.
Have you ever heard the fake sounding cough of an employee just before they get sick and go home for the day. It starts out slow more as a form of communication to get someones attention . Then as the subject dwells on the situation convening them selves they are sick and in need of going home the cough becomes more persistent.
Spidey indirectly touched on this in a thread at sciforum . He said people need down time from there daily axe they are forced to preform . Rejuvenate comes to mind . The subject was about sick days . How many productive days are lost to sick days or fake sick days may have been the thread . How many productive days are lost to phony sick days ? Well I think they are the same . Your body will drop your immunity and cause you to get sick if you don't take down time from your forced protocols in life. That is what Spidey was getting at . You need down time to do the things you want to do instead of the things you have to do . That is the difference right there .
The trick is to find something that you want to do and then do it with all you got . That is the good stress in a nut shell .
Can you see the difference ? If it is fun it is the down time . If it is not fun well then your gonna have a stroke over the whole thing
Course I could whisper in your ear < You feel good < you feel good < you feel good .
You are better < you are better < Feel good < feel Good
See don't you feel better already .
Feel good < Feel good < feel good
You feel good just by feeling good .
O.K. here is an experiment for you::: Go look in the mirror and force your self to smile . Now as you smile at your self in the mirror describe to your self how you feel ?
Feel good Feel
I don't get sick . It is against my religion to get sick . So you can see why I don't get sick .
I don't get stress either . I give stress
Quantum_Conundrum
25th May 2012 - 08:35 PM
QUOTE (Capracus+May 25 2012, 02:01 PM)
Psychogenic?
http://rationalwiki.org/wiki/Desiree_Jennings
I'm not accepting nor discounting your suggestion at this point, only replying my point of view.
Before this got so bad as to require the emergency room visits, I had previously considered myself "lucky" or "blessed" to the point of often realizing and at times even telling others that i was never sick.
In fact, aside from a visit to the doctor over a case of bonchitis, and one or two severe poison ivy cases, plus two boils, well I've almost never been to a doctor since I was a child.
Strangely, I've never consciously had "test anxiety". I usually either aced a test because I know the material anyway, or a fail it, because I suck at studying. I never could take notes or concentrate to listen to a lecture, I needed personal interaction. That's just the truth.
But I was diagnosed with general anxiety and primary depression, but having looked up some other things "Social anxiety" is definitely true, at least definitely with the opposite sex, and "Existential anxiety" is definitely true, as is "choice or decision anxiety". The medicine does not seem to help with ANY of this in terms of intellectual or emotional circumstances, but a stronger dose causes me to pass out. Heck, what they have me on now is not much, and even that causes me to pass out in the middle of the day a time or two per week.
None of that is necessarily relevant to my physical symptoms, but it could be related, or they could be making one another worse, or they could have nothing to do with one another. I just don't know.
But I had the physical symptoms before I was even aware anything was "really" wrong with me.
Plus a psychogenic illness shouldn't produce auto-immune or heart or kidney disease markers on a test, and a doctor shouldn't casually dismiss them either, particularly when some of my physical symptoms overlap some of those diseases indicated by the markers.
Early on, some of the worst cases back in my early 20's did in fact happen during emotional or social stresses. Just for example, when I tried to talk to this girl one time, I mean just talk, I had this problem and it was so bad that I thought I had a heart attack (and for all I know it may well have been, given I'd rate the chest pain as a 10,) and this happened on two separate occasions, to the point that I could not even physically proceed. It stopped me dead in my tracks as if I had been hit by something, and when it happens, one doesn't know what to think; is it medical, is it stress, something else, who knows.
Other times I've had that happen with no apparent stress or stimulus at all; just walk out the door on the way to go do something, or even just sitting at the computer or driving down the road, and the pain hit me so hard it again stopped me dead in my tracks.
I have been punched by a heavyweight black belt in demonstrations, at the time two weight classes above me, with full body torque, and I can tell you that is NOTHING compared to what I experience with even some of the "medium level" incidences of these episodes.
The pain is freaking indescribable in some cases.
It can be anywhere:
top of the head
around the brow
eye ball
face
front
back
chest
shoulders
soles of the feet
palms of the hands
groin
fingers and toes (especially on the tips, but also the entire thing)
any muscle group or soft tissue
It feels like someone driving a needle through your flesh from the inside out.
And like I say, sometimes I might go a week or even a few months without a noticeable episode, and other times it may happen many times per day, many days in a row.
I need to find a doctor that can really diagnose this.
I made the joke to people, but it's true, if I had the money, I'd find the closest person to "House" on television as possible.
Robittybob1
25th May 2012 - 08:54 PM
You've got to study yourself. Look for the little things that help and notice the things that stress your body. I can sort of identify with what you are saying for I got really sick when I was 17 and I felt I never really got over it.
Now 40 odd years later still struggling but I look after myself.
Plenty fruit and vegetables, no smoking drugs or alcohol. Not to much fatty foods. Natural home-made yoghurt is what I experimenting with now. It seems to be helping.
Quantum_Conundrum
25th May 2012 - 09:30 PM
QUOTE (flyingbuttressman+May 25 2012, 02:34 PM)
Do you have any evidence that Neurontin is addictive?
No, not specifically, but I have been told that for some people it eventually causes their hair to fall out.
Is it treating symptoms, or is it treating disease?
Treating symptoms can be dangerous if it is not actually treating the disease, because how would I know I'm having an attack, or continued damage of whatever type it really is, if I don't feel it?
I'm already taking 6 prescribed pills per day, and if I took the full 3 per day of Neurontin that would be 8. Not counting a multi-vitamin, an omega 3 supplement, and I'm supposed to be taking an aspirin every day too.
To top all that off, I need a sleep aid sometimes; I have for years had a problem of not sleeping properly at night, and then being drowsy or passing out during the day, and now I'm taking medicines that make you drowsy, but they don't help me sleep at night. I haven't taken a sleep aid in a few weeks, I probably SHOULD be taking the thing every night, but when I take it my heart races.
I'm taking more medicine now than many people twice my age, both prescription and over the counter...
So I guess you could say I'm afraid of taking too much medicines and getting weird effects is all. Addiction being one of them.
QUOTE
You've got to study yourself. Look for the little things that help and notice the things that stress your body. I can sort of identify with what you are saying for I got really sick when I was 17 and I felt I never really got over it.
Now 40 odd years later still struggling but I look after myself.
Plenty fruit and vegetables, no smoking drugs or alcohol. Not to much fatty foods. Natural home-made yoghurt is what I experimenting with now. It seems to be helping.
I've never touched drugs or alcohol or cigarettes. I wouldn't know one drink from another in most cases.
I've also been trying to eat more vegetables lately, like at least a bowl of salad every day, but I don't always accomplish that. I tried to just eat carrots with a salad of lettuce, tomato, pickle, whatever (usually without dressing, just use some dill pickle juice as a dressing,) since carrots are in the super foods list, and I don't really like sweet potatoes, even though they are supposed to be one of the best things a person can eat...strangely.
Mekigal
27th May 2012 - 12:50 AM
I got s message for you from the other side. Eat your broccoli.
O.k. I would take up smoking if I was you . No scratch that . Your mind is more than likely to conditioned to do that .
O.K. go look in the mirror and say . I feel great . Do it 2 times a day for a week and then see how you feel .
Remember this ::: Doctors want you to be sick. It is how they make there money . If no one was sick then they would be out of business .
The long effects of stress will get you good . Weakens the immune as I already stated .
Once your state of being is weakened your in for all kinds of disease and failures
Your sickness sounds a little like panic attacks. Course that is a catch all diagnosis.
O.K. next time you have an attack splash cold water on your face and see what happens or jump into a cold shower ? See if that shocks away your trouble . If it does then you know you can beat this with mental powers. Positive affirmations
steveaustin
30th May 2012 - 07:15 AM
Mononeuropathy is damage to a single nerve or nerve group, which results ... High blood pressure and diabetes can injure an artery
El_Machinae
30th May 2012 - 01:09 PM
The neuropathy (and cholesterol) can both benefit from an increase in vegetable content in your diet. The small-molecule nutrients in plants can help kickstart the healing process in peripheral nerves. I'd specifically think about biologically available quercetin and luteolin.
What does this mean? I'd suggest that you eat a serving of parsley and two apples every day. Honestly, yes, a serving of parsley. Ideally, if you have the time or opportunity to exercise, you'd eat this two hours before the physical activity.
In addition to the two apples and serving of parsley, please try to eat an additional 5-8 servings of fruit or vegetable. These phytocompounds can temporarily induce molecular pathways that help heal neurons, so you want to 'pulse' your body with them (not take them nutraceutically or 'all the time', the pulsing is important).
Finally, I'd suggest finding some research charity regarding neuropathy, and go to them for some advice as well as trying to figure out how to get people to donate more charity dollars.
This is a problem that needs a cure, which can only come through research.
niels
30th May 2012 - 10:07 PM
Remember that a healthy person is someone that has not been thoroughly tested screened and investigated by the health (perhaps on should say the disease) system.
I encourage the advices of Mekigal with a cold shower when feeling bad, and seek positive affirmations, it is amazing what mental power can do. Also it sounds that you will benefit from increasing your physical activity level, and significantly. 25 pounds overweight and low physical activity easily result in high resting pulse, you wil be amazed about the positive effects you may benefit from an increase in physical exercise. The more the better. Remember that your heart will last your entire life.
And the less you care about controlling and checking and screenings the better you will feel.
Doctors are not being payd for keeping people healthy, and I say this myself being a doctor.
boit
1st June 2012 - 02:37 AM
You are lucky to be raised in a place where they can run all those tests and still lament they haven't done enough. Anyway, distolic BP of 120 is abnormal from all angles. For your age hypertension is definately secondary. That coupled with your anxiety attacks and associated tarchycardia, the other test I'll run (if it hasn't been done already) is Thyroid function tests. There is a drug that will handle your fast heart rate and panic attacks simulteneously.
A positive attitude to life (engage yourself in something productive e.g. charity), cycle to work and get your mind off stressors, pretty much what niels advised.
El_Machinae
1st June 2012 - 12:59 PM
I would also recommend a daily stretching routine. Luckily most people can stretch when they're watching TV. Stretching has a variety of benefits for those suffering hypertension.
But, I'll emphasise again that 'food choices' represent a really low-hanging fruit for your conditions.
Robittybob1
1st June 2012 - 08:44 PM
Some great advice appearing in this thread. Keep it up!
boit
2nd June 2012 - 08:29 AM
As a Physician Assistant (with quite a wide latitude in my country), I still hold that hypertension in a thirty year old is less likely to be primarily of lifestyle aetiology. Think endocrine
http://en.m.wikipedia.org/wiki/PheochromocytomaThey did a CT scan. What about a biopsy of the kidney? Maybe bother battery of tests need to be ordered.
Correction Mekigal. I hope you aren't serious about your allegations.
ryandiem
28th June 2012 - 07:50 AM
You have given most useful information here it's really provide great help for everyone including me.
LaurieAG
3rd July 2012 - 09:50 AM
Have you looked at fatty livers?
Quantum_Conundrum
3rd July 2012 - 08:15 PM
QUOTE (boit+Jun 2 2012, 03:29 AM)
As a Physician Assistant (with quite a wide latitude in my country), I still hold that hypertension in a thirty year old is less likely to be primarily of lifestyle aetiology. Think endocrine
http://en.m.wikipedia.org/wiki/PheochromocytomaThey did a CT scan. What about a biopsy of the kidney? Maybe bother battery of tests need to be ordered.
Correction Mekigal. I hope you aren't serious about your allegations.
My CBC and metabolic panel had some markers which were completely out besides just the cholesterol, although the cholesterol was the worst on the test.
I'm trying to remember what it was, but it was the "bad" ones at the bottom of the list, which a google search and medical searches online indicated some pretty bad possibilities, such as kidney or liver problems, neuro-muscular diseases, etc.
I asked another doctor's opinion about it, but he said that it was not out by enough to matter, even though it was flagged on the paper as being completely outside of normal ranges.
Incidentally, my calcium was also off the scale high, even though I don't drink or eat nearly as much milk/dairy as you're supposed to, but I do eat a lot of "real" American Cheese, not the oily processed crap.
flyingbuttressman
3rd July 2012 - 08:40 PM
QUOTE (Quantum_Conundrum+Jul 3 2012, 04:15 PM)
Incidentally, my calcium was also off the scale high, even though I don't drink or eat nearly as much milk/dairy as you're supposed to, but I do eat a lot of "real" American Cheese, not the oily processed crap.
Milk doesn't contain quite as much calcium as the milk industry claims, but it's one of the top sources:
http://ods.od.nih.gov/factsheets/Calcium-HealthProfessional/What is "real" American Cheese? As far as I know, all "American Cheese" is processed cheese.
http://en.wikipedia.org/wiki/American_cheese
Guest
7th July 2012 - 11:30 AM
QUOTE (flyingbuttressman+Jul 3 2012, 08:40 PM)
Milk doesn't contain quite as much calcium as the milk industry claims, but it's one of the top sources:
http://ods.od.nih.gov/factsheets/Calcium-HealthProfessional/What is "real" American Cheese? As far as I know, all "American Cheese" is processed cheese.
http://en.wikipedia.org/wiki/American_cheese
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